There are downsides with downloading their app just to input bad data, but it’s a fun thought.
edit: While we’re at it we might as well offer an alternative app to people.
I posted in !opensource@programming.dev to collect recommendations for better apps
The post: https://lemmy.ca/post/32877620
Leading Recommendation from the comments
The leading recommendation seems to be Drip (bloodyhealth.gitlab.io)
Summarizing what people shared:
- accessible: it is on F-droid, Google Play, & iOS App Store
- does not allow any third-party tracking
- the project got support from “PrototypeFund & Germany’s Federal Ministry of Education and Research, the Superrr Lab and Mozilla”
- Listed features:
- “Your data, your choice: Everything you enter stays on your device”
- “Not another cute, pink app: drip is designed with gender inclusivity in mind.”
- “Your body is not a black box: drip is transparent in its calculations and encourages you to think for yourself.”
- “Track what you like: Just your period, or detect your fertility using the symptothermal method.”
Their Mastodon: https://mastodon.social/@dripapp
I am doing my part. Don’t really know what I am doing, just happy to br a part of it.
Edit. Is this normal? Just presse at random
Oil moment /s
Why in the world do we even need apps for this stuff? There is no reason to give your data to these companies at all.
Here’s a crazy thought: get a journal. And write in it.
I don’t know if you’re someone who’s not had to deal with menstrual cycles, but that’s not really helpful advice. Apps provide a lot of useful information and often integrate with other health data to offer better predictions and general insights. Many cycles are not “oh, it’s the 15th, here we go”. Many can be affected or predicted by mood/diet/symptoms. That’s a lot for a person to keep track of. My app will sometimes predict up to a 3 day shift and be completely accurate. I have looked at the graphs and sometimes you can point to a specific symptom and say, oh that must be what it used for that prediction, but sometimes you can’t. Get stressed every year around the holidays to the point where it changes your cycle? Your app will remember that. One less thing for your stressed mind to worry about. Additionally, even if they were super regular to the day, having an app to send a reminder, “hey! Get ready tomorrow” can be helpful to make sure you have any supplies you may need.
Also, we use apps for things we don’t need to all the time. And generally, it’s for the same reason: apps are easier and more accessible. Since you mentioned a journal, there are plenty of apps out there that replace journals themselves. They are used for several reasons, but one would imagine using an app is easier because it’s not an extra item you have to have on you and can potentially lose or forget to bring, it’s always on you so the resistance barrier is smaller, it might even have search functionality.
Do I think people should be randomly downloading these apps? No, it really doesn’t do anything at all. But blaming people for using conveniences because the government is trying to take away their rights is really missing the mark. It might be good opsec, but it’s dismissive at the least and not really solving the actual problem.
The absolute madlad
Based
Why are such apps popular? Do these offer something more than what a combination of reminders and notes (digital or analog) providr?
Perhaps, these apps offer some insights based on the data. But would one take the risk of listening to an app for medical advice?
Hi! Lots of people in this comment section who clearly don’t have periods, but yea they do offer something more. That’s why they’re used. It really feels like a bunch of presumably men are here in the comments to remind women that paper exists? Yea, we know. Other than these all being easily searchable questions, allow me to say we use them for many reasons including: Convenience - you almost always have your phone on hand. Do you really want to keep a dedicated period journal on your person at all times? Predictions - despite what you may believe, periods are not all regular. Some can skip months at a time. Most apps have a bunch of data sets they use to predict things even if your data isn’t complete Integrations - does my journal automatically cross reference my symptoms and alert me that it noticed that eating apples makes my headaches worse? No, and the level of analysis being done would need both an inhuman amount of time and resources to do by hand
Women are not “listening to an app for medical advice” so much as using apps predictive algorithm. The app has access to much more data than we do individually and it can be extremely helpful for women with irregular or extreme periods.
Is it great opsec? No. Sometimes things trump (lol) opsec. I still will advise against anyone (man or woman) downloading and using these apps if they have alternatives. The apple health app seems like a privacy focused one, but I can’t stress enough how none of that matters anyway. The courts and public opinion will be stacked against women in these positions, so any app data that can be used will be, and any lack of app data will just be used to make the case anyway. Keep as much data as you can as private as you can, regardless. People adding false data to the does nothing.
Yeah, the only way anyone should have ever trusted these is if the data was stored locally only. There’s no reason for it to be uploaded.
I don’t want to victim blame but if using an app is optional and it could get you in trouble with the law (regardless of how bad the law is), you should not use it.
Having said that, as a dev, please pollute data as much as possible.
Management needs to learn how valuable good data is and good data comes with proper consent (most people wouldn’t share their data if they could opt out).
Legit only comment so far to not just say “PAPER EXISTS1!1!1!1!” So props for that.
Can I ask how polluting the data will help? Most apps that don’t care about privacy can probably identify people with zero issues. I bet people are giving these apps location data etc.
I don’t know what you mean by good data comes with proper consent. Like, ideally all data was offered with proper consent, but how does that make data better or worse? If anything, data given without consent is likely to be more wholistic/unedited since they were not given time to redact/remove info. If someone stole my phone and took all my data, they would have “better data” than had I been informed this would happen and given time to wipe my phone.
Can I ask how polluting the data will help?
It makes data less reliable.
How do we know if a certain profile is genuine vs someone dicking around. Or mostly genuine and the person didn’t do some malicious compliance for certain parts of the app they don’t care about.
If it becomes a social trend and someone gets caught, it would be easier to say they lied cause they wanted to do a tick tock challenge.
I don’t know what you mean by good data comes with proper consent.
When someone wants to help the data collectors then they would do more proper hygiene to their profile, keep things up to date and give honest feedback. Whereas someone like me never gives consent for data without being forced, so I always try to give as little and lie as much as I can.
I guess the assumption I made was that practically everyone knows apps and websites track them in some shape or form (even the least tech savvy person knows websites get total amount of visits), so “acting like no one is tracking you” isn’t ever true to begin with. Especially given this context for a period tracking app.
These apps are very helpful for people who have irregular cycles or who are family planning. I relied heavily on a similar app in high school, because my monthlies weren’t monthly. I was able to share that data with my doctors to help better understand my body.
This really indicates a need for self-hosted solutions.
Absolute worst case you could always keep track of it as a raw text/markdown/excel/Libre calc/whatever your preference is. You’re not going to get any predictions or useful data out.
But it would at least provide a record for your doctor if need be. And as long as you encrypt the device you store it on, or the directory its stored in, it’s relatively safe to do so.
How does this work with non technical people?
This is a legitimate concern.
A teenage girl who is looking to track her cycle is likely not educated on data security - as someone who works with teens, Gen Alpha is shockingly tech illiterate. They are going to go into the App Store, type “period tracker” and download the first thing that pops up.
Non technical people are not raccoons, they can use a text file.
Most probably cannot, especially in an organized way
The number of people I deal with at work that have no idea what a file is…
And forget about folders.
I CAN’T FIND MY DOCUMENT!!!
Okay, where did you save it?
I DON’T KNOW, I JUST CLICK SAVE LIKE ALWAYS!!!
*remotes into workstation and clicks save only to find the file was saved in their temp directory*
I had that conversation hundreds of times when I was doing desktop support…
Sometimes I feel like they are, or maybe I’m the raccoon but yes
They don’t know what a text file is.
They don’t know what a file is, but they can use an app store, to download an app, create an account, log in, and interface with the UI to load data.
Got it
I did specify a text file. And yes, they’ve been doing the second one since they were 5. Not all tech skills are transferable.
Yes, actually. Downloading apps, making an account, logging in, and using an app are all things they have done before. Opening up Notepad on their computer (if they have one) and saving a text file then navigating back to it later and opening that file is something they probably have never done before.
Write it down on paper or put it in a word document or excel spreadsheet (or FOSS equivalent if you don’t have Office 365).
From a medical perspective, a handwritten journal with dates and notes about the amount/consistency of the flow as well as associated symptoms would be the most useful. Having irregular periods that last for 3 days with very heavy bleeding would have a very different diagnostic approach than irregular periods that last 3 to 5 days with normal bleeding and horrible cramps.
A potentially good option if you’re on Android is putting it in your secure folder. It’s basically just a sub directory for all your files, notes, and pictures, but it an encrypted form.
So if you’re technical enough to understand jow to enter a password (most people), then you have an easy to use option. Just don’t forget your password, and don’t set it to something easy to crack. It’s the same rules for any other password.
I’m sure there are similar options for windows/mac/ios
But if you’re a more technical user, by all means it is in your interest to encrypt the whole thing.
That’s not great advice for people who weren’t afraid of law enforcement in the past and are now feeling exposed due to data they already gave away.
Most data already provided won’t be useful if they stop providing the data. Generally the concern is for miscarriages/abortions, so just change the data to indicate you were having a regular period and then request a data deletion/account close/stop using the app is actually pretty much as good as it’s gonna get.
Not to mention: a lot of people don’t really understand how technology works. They just use the app without even thinking where that data goes. Like yeah, it would probably behoove those people to educate themselves on the technology they’re using, but I certainly don’t want them to face unjust legal repercussions just because Republicans hate anyone with a vagina.
Period tracking is a very good tool for understanding your health. Issues may be spotted very early in some cases.
If it’s required for preventative healthcare, the blame is solely on the exploitative app operators for any data safety concerns.
Calling an app that tracks menstrual cycle “Drip” is peak comedy
iOS has a first party health app that has menstrual tracking. I’m under the impression Apple takes data security seriously. If you don’t, self hosted is probably best.
I’ve been using it to track my poops.
Eat more fiber for extra data
Don’t worry. I give them literal shit loads of data. Even more after fajita night.
You would think it wouldn’t be this easy, but given the incredible disconnect from reality on reporting late term abortion statistics, this could scramble data.
For those who don’t know, the raw statistic of late term abortions comes down to late term terminations via a procedure used in pre 20week months to end a pregnancy. There’s little difference in logging the data. Babies can die inside, even as you’re trying to attend your own baby shower, like with that young girl who recently tried to get help from 3 Texas emergency rooms, but instead died due to the late term corpse rotting in her uterus.
The procedure used to expel a stillbirth in the late term is an abortion. That is what pregnancy termination by procedure is: abortion. But the context of corpse removal is lost on political alarmists who don’t bother to do their own research on how/when the procedure is used in late term pregnancy, in favor of uneducated hysteria and the demonizing of women.
My point is, given how resolutely people have not delved into the context of this data regarding stillbirths, messing with menstrual trackers can and probably will work, provided you don’t limit yourself to Flo.
I don’t think this is likely to work tbh. I’m sure the app has enough device data to link the user with a broader data profile that would easily eliminate data from people that don’t actually have periods.
The data profiles people build on citizens aren’t limited to one data source, and emails/phone numbers/browser fingerprints/device details are all things that can be keyed between data sets to relate identities.
Fascist law enforcement can and would do this kind of thing to chase individuals. This kind of noise seems easy to filter out.
Talk to your state reps and governor, ask them to codify HIPAA at the state level. This is the federal law that guards medical privacy. It is on the chopping block in Project 2025.
It doesn’t guard data buying and selling though. There’s an add on over in WA that does that, to expand on hipaa, but I don’t think many others have done so.
I signed up for the app and there are so many dark patterns used in the signup process it’s insulting.
I’m so sorry ladies, but you had me until the Ts & Cs. This app is a privacy nightmare. I would put all of this energy into finding or crowd funding a better alternative.
I’ll second this. I was going to participate in the fake data, but then I read what this app does; no one should install this at all.
I accepted the terms, signed away all of my privacy, and completed a whole questionnaire regarding my goals for using the app, my level of knowledge about my menstrual cycle, regularity of my periods, symptoms I experience before and during my periods, and other conditions I have which impact my sexual health.
Only after the app had harvested all of that from me did it reveal that a subscription is required, and the only way to trial it is to commit to payment when the 14–day trial period ends. Like all “free” trials, I can “cancel any time”, and like all “free” trials, it’s my job to remember to cancel it before it automatically charges my card, so fuck you very much and uninstall.
Having already agreed to my sexual health data being sent to “people you can trust because we just want the best outcome for you we promise”, I would have actually been fine going the whole way and trialling it if there were no strings attached, because it did seem to be a lot more about sexual health generally than just tracking periods.
When it asked for my goals, I included “better orgasms” and “sexual intimacy”. It asked for my current level of sexual activity and something about my masturbation habits.
When it asked about my other conditions, it provided options for PCOS and Endometriosis. I was genuinely curious at this point. I was basically entering the responses my wife would give, and right now we’re strategizing ways to alleviate PCOS–related pain. Data driven insights may have been genuinely useful. Could have persuaded us to subscribe, at least for a couple of months, had the trial showed promise. Guess we’ll never know.
it’s quite silly imo. unlikely to accomplish much or anything at all. teaching people about free software like drip is way more likely to actually help people. it’s free, open source, and completely local.
edit: they even have a mastodon!
Because moving people off Facebook messenger and over to Signal or WIRE instead has been so very effective.
You are right. We here know it. But we are a teeny tiny percentage compared to 340million.
Remember, inertia is a major driving force of humanity.
eh, I’d argue this is very different than signal. for signal to work everyone needs to use it. if you want to use drip you don’t need to make your friends use it too. it’s as simple as installing it from the play store and using it like any other app.
Really hard to help people who refuse to help themselves.
Not to mention that downloading that flow app will help them boost thier numbers, I doubt they’d care if men are using it as long as they can sell the data…
Would a bunch of users entering garbage data, with not all of them being totally obvious, make it harder to sell that data? Possibly.
It might take a while for thier customers to notice that the data is garbage, or they might develop a way to figure out what data is garbage and still sell other data gathered from the OS/sensors etc from users trying to poison the data.
Drip seems to be the leading recommendation. I’ve edited the post with it so people seeing the meme also get the recommendation :)
awesome, thanks!
I have a reminder app that randomizes reminders for a medical issue I’m dealing with.
Sounds like I’ll be dealing with two medical issues that app will require now.
Just curious, why randomize?
Why randomize Flo or why am I doing it for other reasons?
The latter, for other reasons
I am dealing with a mystery illness which has made it so that I cannot eat solid food. I’ve had it for well over a year now. The current theory is that it is ARFID, an eating disorder that has nothing to do with body image like most eating disorders.
Because I never feel hunger or thirst, I have had reminders on my phone to have nutrition (Ensure and soup mostly) and drink water.
The doctor that I am working with thinks that randomizing my feeding routines rather than having them at the same time every day, which I was doing, will be therapeutic. I’m also supposed to do a sort of wellness check and log when I feel hungry three times a day. The answer is always either ‘not hungry at all’ or, if I’m really stressed, ‘the concept of hunger is repulsive to me.’ I don’t want to say this isn’t working yet though. It’s only been a few weeks.
That sounds super interesting. Good luck.
Thanks!
So I just installed this right now after seeing this, and man this app has a lengthy initial startup process with dark patterns and everything. Now apparently I’m ovulating in two days. 🤭
I’m “abnormal” 🫨
So it’s not normal to have a 55 day cycle? Oh snap!
I’m going to learn how to orgasm!
Is it FOSS? Or does it collect tons of data?
Oop, read the post better. Nevermind hahaha
So I fucking hate that this is where my brain went, but my kneejerk reaction to this was: “If I do this, could it be used as evidence to charge my wife with the death of a nonexistent fetus?”
I live in the cousin-fuckingly-deep south where women are incubators and a long list of stereotypes. I could definitely see it argued in court - successfully - that an app like that was only used on my phone to try to conceal my wife’s data, and the data points to one of the ways we’ve criminalized pregnancy.
…and that’s thinking about what could happen here and now. Once Trump has had his way with our country, we’d probably just get deported to one of daddy Putin’s gulags or some shit.
I really fucking hate it here.
not to mention the reason why you’re only supposed to say the word “lawyer” to cops is they literally tell you: “ANYTHING you say CAN and WILL be used AGAINST YOU in a court of law.” That doesn’t mean “might or maybe” or “to help you.”
Track your nightly flatulence on a piece of paper too, and keep the same data on it that you put in the app. If it makes it to court claim the app was just a convient way to track other things, and let the courts discuss your farts.
Yeah, I would only do this if I lived alone or only with other males and had no SO/post-puberty daughters/close female friends.
Done. If only I could script it…
